Now seeing the consultant at the beginning of May instead of the end. Found out the reason I can’t see him in April is because he’s away. For the whole month. Lucky him! So maybe, just maybe, I’ll be off the drugs by May 2nd? Here’s hoping.
Archive for March 28, 2011
So I’m asking Hospital Number 2 to move my stroke consult from the end of May to the end of April. If they don’t oblige then my lovely GP is going to ask them again. The hope is that I can come off the warfarin at the six month point, which is the protocol, and then we’ll be done.
I’m about to go on holiday for a week, and then I only have 2x 4 day weeks and a 2 day week left at work. So I asked for a ‘completely fit to resume normal duties’ (after my holiday!) note and she obliged*. The only difference really is the ability to be on call outside office hours, which I’ve not done since I’ve been back, and it’s utterly likely they’ll not bother to put me back on only to take me off again a couple of weeks later (though they might; I think Kate would like to turn her phone off when she cycles!!!). The interesting comment though was the GP saying that if it was a long term gig she wouldn’t have given me the note. Carrying a phone and being ready to respond 24/7/365, even if it only actually happens, on average, two or three times a month, would not be sensible, for anyone?
INR is at 2.4, so I don’t have to get that checked again for another month. I’m also on a steady 9mg a day. Apart from knowing where one is, it’s also useful in terms of prescription refills as I can just ask for packs of 3mg tablets. In the past I’ve had shelves full of 5mg, 3mg and 3mg boxes so I can make up the right dose for the day. I’m close to out of pills so I just asked for 288x 3mg. Enough, for those of you working it out now, to last me to my next consult in May.
I’m hoping I can come off them then and we can put the whole thing to bed.
It’s 5am on the Friday of my first 5 day week since October.
Normally I walk to and from work but I didn’t yesterday and I don’t suppose I will today. Some (non-medics) warned I might get really tired but that’s not really the issue. It’s more that my balance gets tired by the end of the week so walking is harder. I can still do it, it’s not like I’ve had to slow down again, but I’m aware of that my head is there again. It’s not like it was, i.e. it’s not really a problem, it just is.*
Yes, I’ve been neglecting you. I’m sorry. I said it would trail off and it has!
I was asked today how often I was seeing medics. The answer is that my INR checks are back to once a fortnight, for now. I’m seeing my GP next week but then take it as it comes. I’m seeing the neurologist and having another scan in May. The plan is to come off the drugs in May. That’s the bit I want. Hopefully the weight will come off again then: I don’t like it.
If someone had told me 5 months ago that in less than 5 months time all this would have happened, I’d not have believed it. I’ve been quiet of late because something else has been going on. Actually a few things have been going on. but this one is announcable now.
In about 6 weeks I’m leaving my job behind. I’ve been doing it for nearly 9 years so it’s monumental. And, as you will have surmised if you’ve been reading this, a number of my colleagues are also my very good friends.
Yep, it’s been a month since they last checked and it’s now just below the threshold. So now I’m back to a fortnightly check. If I were to hazard a guess I’d say it’s been bouncing around all month, as usual. It doesn’t seem to make much difference: the dose might be stable now but I seem to make it bounce around. Anyway, we’ll see in a couple of weeks.