Tag Archive for gp

Letter from the Neurologist

The neuro wrote to my GP from the appointment last week.  Sometimes it’s easier just to show you:

(Personal details blocked out, sorry!)

“Recanalisation” means the artery having blood flowing through it again. In my case, the clot still appears to be there.  Good job he explained that was the case and that’s what the aspirin is for.  Guess I’d better start taking it more diligently then!

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so, i forgot the meds…

I’m away for the weekend, in Norn Iron.  I therefore dutifully decanted 6 days warfarin (even though I’m only away for 3) into the cute little pill box my friend Patricia gave me for just this purpose.

I arrived in Norn Iron, and I can only assume the pill box is still on the bed where it fell, presumably, as I packed between the small case and the slightly-larger-than-the-everyday-one handbag.

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V quick update: GP says yes!!!!

:-) :-) :-)

I’m in the GP’s warfarin clinic.  In fact, they already did my INR and it’s up to 2.0 this morning, so we can lay off the Clexane tomorrow and recheck on Thursday.  I think they’d like the warfarin to get to me a nice, stable  2.5, which is the middle of my required range (2-3).

This is fab on several levels: (1) actually met my GP and she’s utterly lovely; (2) I can walk round the corner instead of treks to hospital to do this; (3) I trust them; (4) well, um, they keep saying “she’s really young” when they talk about me in front of me.  That absolutely counts.. right?!

The GP, who is a warfarin specialist – thank the Lord she’s at my surgery – has only seen one dissection before, and that was in a kid who had an accident with his bike.  I’m learning that being an NHS novelty is also, sometimes, quite helpful.

Now do excuse me.  I have to call and cancel my appointment tomorrow with she-who-shall-not-get-another-mention.

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I’m late for work

At this time on a normal Monday morning, I’d already have been in work by now for about 30 minutes.  Instead my house is getting a little bit animated as E gets ready to go.  Hearing it reminds me that everyone else is too.  Except me.  I’ve been home for 2 weeks and it’s the first time I’ve felt like there’s a timetable going on that I’m not part of.

Time is funny thing at the moment.  I can’t believe I’ve been home for two weeks. I’ve been trying to work out how that’s possible when it feels like so much less.  On the other hand every day seems so long that, at the end of each one, I can’t quite believe everything happened since that morning.  It helps that sometimes I note down things for the blog at lunchtime, else I’m not entirely sure I’d believe it all happened in the same 24 hour period.  And then again, it feels like a lot longer than 3 weeks (this afternoon, Kate!) that the world started spinning so hard that I sat on the floor and rang Kate and said, “This is going to sound really weird but can you come over to the fifth floor of [building] and get me.”  Poor, poor Kate… neither of us had a clue then what I was getting her into.

Anyway, I’m hoping everything changes today.  See the GP this morning. If they’ll take on my bloods/drugs then I’m out of the system that binds me to the person we’re not going to mention again; for someone I only saw for 15 minutes she’s had far too much airtime already.  Assuming it all works, the daily timetable becomes more local and the daily cab to the hospital routine can be ditched.  I’ll only have to go for the stroke clinics and I don’t think they happen very often.  And because I’m on the trial, my drug needs get delivered to my house by the lovely Tina this morning (I’m out of syringes after today because no one expected me to be on the Clexane this long): I haven’t had a single prescription yet, I just call and say I need more X and they deliver them.  Shame they aren’t more interesting and less dangerous really.  (I didn’t mean that, she says, feeling the need to clarify for the youngest brother!)

A couple of musings that I’ve had overnight:

  • The original advice was that alongside physio, I’d need to stay in the hospital until I was stabilized on warfarin.  I’m glad we decided that was a rubbish idea because I’d still be there.
  • I’ve still no idea who you all are. This thing sends me stats.  There are a surprising number of you who are kind enough to drop by.  But I haven’t send the link to this many people and don’t know who you are – and you seem to be shy.  I can’t actually come and bother you right now, if you think about it, so do feel free to say hello and/or drop me a mail!  I’ll see if I can find a way to add a contact page that will send me emails without having to give out the address to see if that helps.

 

stats from start to yesterday

Bugger, just knocked over the breakfast can of diet coke. That’ll teach me for using the left hand to put it down before I’ve turned on a light.  And yes, I’ve told you about the diet coke for breakkie so you can bag me about that instead of the admission that being in darkness knocks the hand (and everything else) back about a week in time.  Anyway, better sort that out.

In the meantime, have a nice day/week at work.  And to my 08.25 breakfast crew; miss me please just for this morning, because today I miss you.

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Your smile makes me smile

:-)   :-)   :-)   :-)   :-)   :-)

I may have got round the problem of the anticoag woman at Hospital Number 3 via my GP’s receptionist today. (As opposed to the unhelpful one yesterday: Her: “No we haven’t got any GP appointments until Friday week.” Me: “I had a stroke a couple of weeks ago; does that make any difference?”  Her: “No.”  Me: “Ok, can I book to see a practice nurse.”  Her: “Well they aren’t available until after that”. Me “Shall I go to A&E with my non-emergency then?” (No, I didn’t mean it!!)  Her: “Ok.”) .  Anyway, I tried again this morning and this one said, “You can see the GP that specialises in warfarin first thing on Monday, is that ok?” Is it ok? Yes, please!!! Because potentially this means I can call up nightmare anticoag woman on Monday afternoon and tell her she has a free slot on Tuesday.  Hmm. If at first you don’t succeed, ignore the utterly unhelpful receptionist and seek out the good one. So now I just have to make sure the GP is nice and chilled about the CADISS thing. Easy…!(?!)

I got my face back today.  Though it’s looked normal all along, the left half has been numb, to varying degrees, since this all started on 11 Oct (18 days!!!).  It’s slowly reduced but this morning I got it back properly.  The left half of my lips are still a bit tingly but the rest is mine again!!!  (Hmm, as I type I realise it’s a bit more numb again, but we’re talking in a majorly minor way, if that makes sense!!)

So I have my face back, I can walk, if a little more slowly than usual, and…. hmm… there is one more significant thing that I had to re-learn, but I’m not ready to blog that one yet!  Anyway, I admit I’m tired and can usually feel my head, but generally it’s all good; particularly if I can use my GP, which is literally round the corner, instead of the hospital for the whole bloods bit.

Speaking of which, I’m back to the vampire palace tomorrow morning for bloods, so we shall see what the old INR is doing with itself.  After that, assuming the GP comes through, I won’t need to go back to the hospital again until the stroke clinic.  I think I’ll actually miss the people in trolleys (where it’s done).  I’ve been there nearly every day as an outpatient, so they’ve always known me as someone who just pops in every day rather than having the ‘proper-patient’ mentality about the whole thing.  And they’re always really nice.  They listen as well as speak so I always know what’s going on, and I get to tease the docs about their rubbish blood taking skills and demand Alaha or the charge nurse who’s name I can’t remember (Mark, perhaps?) instead.  And when the haematologists forget to call me  in the afternoon with results and corresponding dose changes, which is about 50% of the time, I just call trolleys and they chase them up or get whichever doc is there to do it for me themselves. So it always feels like a solid place to know and be.

All the naff smilies in this post represent my smiles today.  For the prayers among you – thank you… I think I’m on the road to cracking the bloods thing and my friend (number 3 below) has had already gotten a brilliant helping hand through the bumps this afternoon.  I have the print shown above (“your smile makes me smile“) on my stairs and today this is proved, once again, to be true.

:-)   :-)   :-)   :-)   :-)   :-)

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